When I was a kid, nobody told me about mental illness. It seemed
to me, as it may still to you, to be some sort of a myth, something that
existed only to create fodder for campfire stories or compelling
movies. I had never, to my best recollection, spent any time with
someone who had a mental illness. I'd always avert my eyes whenever I
happened to see somebody in the strange and epic throws of mental
illness, talking to themselves, or acting out of turn with what I
considered to be normal. These people were not people to me; these
people were gone, mere shells that looked like human beings but with a
wild ether of otherworldly intent in place of an actual human soul.
Inside I'd feel both a pang of fear and a deep pity, which together were
like a wretched black mass that tore at my gut. I can remember always
wondering what exactly had gone so wrong for these people that now the
normal human characteristics that had once been were gone. I'd feel a
compulsion to help but I was both too scared and knew too little to do
any good. So I shut them out, trying so hard not to look when they
passed, struggling to not make eye contact for fear that they would suck
me in to their world.
I've always been interested in figuring out
what makes things tick. After a childhood of taking things apart, toys,
electronics and what have you I came to the ultimate fascination of
people and their thoughts, feelings and experiences. Just what in the
hell made people tick? Suffice it to say that I was fascinated by
Hollywood accounts of mental illness, internal struggle and psychology.
I'd enter movie theatres always excited by the possibility of retaining
some kernel of understanding about what exactly made people behave the
way they do, and even today I still only have a general understanding.
I'll put it lightly, nobody told me that one day I'd be one of those
poor afflicted people walking down the street with no clear indication
of what was real and what was not. Nothing in my life before my "break"
prepared me for life in the shoes of a schizophrenic.
Today I look
back on my life as two separate and distinct phases, one being who I
was before the episode and the other being who I am now. I see it as
almost two separate lives instead of one. I recall how I was gregarious,
extraverted and carefree in the teenage years of that life that is now
gone. Who I am now is a virtual 180. I am quiet, reserved, a bit
paranoid, and prefer to be alone. Granted, as I am merely four years out
of the gauntlet of schizophrenia I regard myself as shy 4 year old,
still just learning how to interact with the world. Perhaps ten or
fifteen years down the line when I am a seasoned pro at dealing with the
disease things will be different, but who can tell? I'm sure that
things I struggle with on a day to day basis seem infantile and obvious
to most people but as I said, I'm still learning how to interact with
the world as a virtually new and different person. I still have as
strong a desire to connect with people as I did before, but due to my
illness, a spring of overwhelming fears and paranoia keep me from doing
so. I also have the tendency to overanalyze every single tiny
interaction until it's cold and dead. Sometimes, until it means
something entirely different than it did originally. I find that many
times I overanalyze something to the point where it's taken on an
entirely different life. Now instead of an obliged polite smile from a
girl that meant nothing I'm dealing with the emotions of a desperate
unrequited love that exists only in my mind. I'm learning more about the
world every day though and those who know me best describe my progress
as slow and steady.
I suppose I should take you back to where
things started to change though. I was in freshman year of college in
2004 having left a high school where I was runner up for prom king. I
had received accolades ranging from a journalistic award for my work on
the school paper to the touted biggest applause at my graduation. I was
friends with everybody. Those whose names I didn't know still always
received a warm smile from me in the halls. As a freshman in college I
desperately tried to make connections and form friendships. To my
dismay, all the tricks I had used in high school weren't working with
this new and unfamiliar crowd of faces. Instead of making simple
friendships it seemed the only motivation these people had was to get
drunk or high and have sex. Nobody responded to me the way they had in
high school. They all seemed nervous and wary of a friendly smile. I had
dabbled in marijuana and alcohol in high school but had never made it
as much a priority as it seemed to be at this college. Desperate to make
friends though, I began to use alcohol and pot much more frequently
seeing it as the only way in to a daunting social hierarchy. Before long
I was smoking marijuana every day, multiple times a day. It hadn't
quite occurred to me what was happening but as a result of the pot I
felt dreadfully insecure. I amped up my goofiness in an attempt to make
people laugh so I didn't feel so bad. Accordingly, I was ridiculed for
it. I finally realized what was happening one night when I overheard
what the guys I had smoked with were saying about me. It's as though my
world broke in half.
I began to worry constantly what people
thought of me. In an attempt to self medicate I smoked more and more
pot, and I became more and more afraid to go outside and be among
people. The paranoia was crippling and nothing I tried to squelch it out
worked. At the end of the semester, I moved back home and transferred
to my local university. Still smoking a lot of pot, things only got
weirder. I began to personalize things thinking the only reason they
existed were for me alone to see. I started to think that everything I
saw was some kind of code or indication meant only for those who could
recognize it and I was one of the lucky few. Foremost, I started to
recognize the connections everything had to everything else. The
interconnectivity of every innate thing, animate or inanimate, was
profoundly apparent to me. It was as if an entirely new world had opened
up and I was the only one who could see it. Before long, I realized
that every bit of media, TV, newspaper or otherwise held messages
apparent only to those who could read them. I coined it "reading between
the lines." A lot of it seemed to be gibberish but there was a good
percentage that spoke to me personally, as if it was meant for me alone.
Soon
I began to believe that whoever was putting this stuff out there knew
me intimately or had been watching me for quite a long time, even in my
most private of moments. They knew things about me that I had never told
anybody. I questioned everything. Why me? Why was I so important? Why
was I the only one that could decipher what they were saying? I had
conclusions but I was hesitant to jump to them as I wanted to remain
humble. I wrestled with these notions for months, resistant to what they
were saying and fighting them to stop. They never went away.
Eventually,
I accepted defeat and decided to go with it, to assist whoever "they"
were because they were sure as hell not going to stop bothering me until
I did. This led to a period of careful analysis of every piece of
stimuli I encountered as I searched for messages and indications towards
what they were driving at. The amount of fluff I sifted through made it
increasingly hard to discern what they were saying. So I decided to
trust the things that I had always deemed worthwhile - my favorite
musicians, my favorite news sources, and my favorite TV channels. It was
still hard to determine what they were saying but I searched for
patterns and repetition and it soon became apparent that I was a very
important person who had a lot of work to do. From all that I gathered I
was meant to save the world by bringing a message of peace and
understanding to the government. In essence I was a secret leader,
higher up than the president. I'd watch C-SPAN for hours interacting
with the TV until I saw someone that represented me saying something
that I said. This was apparently on my behalf.
Before long, I knew
I'd have to leave my old life of comfort in Boulder, CO and get to
where I could do the most good. It seemed that the world had taken
notice of me. My first thought was to go to D.C. but I knew later that
I'd do the most good at the U.N. in New York. I knew they'd be waiting
for me. I struggled with these indications for a long time until
eventually, I left with no word to my parents. I knew they'd understand
once they realized who I was. Full of delusions and a quite healthy dose
of paranoia I set out. I'll say this, I got nowhere and was found on
the side of a new England road by a kind and gracious woman who took me
in and paid for my ticket home. My journey is chronicled as fiction in
my novel Connections.
When I returned home, amidst jabbering about
aliens, conspiracies and connections, my parents, knowing no other
option, took me to the Psychiatric hospital where I remained for a week.
It was there that I was diagnosed Schizoaffective and eventually
accepted my diagnosis. I was returned to my parents still full of
delusion and paranoia and I have since been on a long and arduous
journey back to normalcy and stability. As I said before, it's been a
slow and steady battle and everyday I make small improvements.
In
the four years since my diagnosis one thing has become blaringly clear
to me. That is the travesty of misconception when it comes to the label
of mental illness. Inherent in those two words are an overwhelming fear
on society's part of the implications that the label carries with it.
Society is misinformed of the overwhelming amount of success stories of
mentally ill people who faithfully take their medication and have some
sort of support structure established. The fear that comes with the
label is due to decades of misinformation on the media's part about the
mentally ill. Rarely do you hear stories on the news about how well
someone with mental illness is doing. The media coverage on mental
illness seems largely dominated by stories about how violent or out of
control someone with mental illness can become when un-medicated. The
result of all the negative news is a stigma so strong against mental
illness that those who suffer may have as hard or harder a time
re-acclimating because of the stigma, as they did when they suffered
with symptoms. Organizations like the National Alliance for the Mentally
Ill and BringChange2Mind are actively working to battle the stigma
showing that mental illness is no different than cancer or diabetes, but
there's still a lot of work to be done. According to the National
Institute of Mental Health 26.2% of adults suffer with some form of
mental illness. That's 1 in 4 people that are afflicted.
I'll
leave you with this, what exactly is normalcy? We as a society have a
set of rules that we adhere to mainly out of respect for others but also
partly out of fear of others. We all have burdens to deal with and the
strange man walking down the street talking to himself only does so
because he's found no other option of dealing with his disease. Some
people are stubborn and some people are submissive. Some people deal
with their problems by bottling them and some people scream or cry to
express themselves. Everyone you know or ever will know is just trying
to get by in this world of confusion and heartbreak without surrendering
their illusion of control. Those with mental illness, however they act,
are no different. They merely have different brain chemistry than you.
People joke about going crazy and some are already but have never have
been diagnosed.
Keep this in mind, People with mental illness are
still people, they still have thoughts, feelings, ideas and guilty
pleasures. They like ice cream, long walks on the beach and they want to
be loved despite their condition. They are no different from you, they
simply have an affliction, an illness or a disease. How would you treat
someone who has cancer or diabetes? Why would you treat someone with a
mental illness any differently? People are people no matter what the
circumstances.
Mike Hedrick lives and works in Niwot, CO. He has written for a
variety of publications and magazines and also has a collection of
poetry and short stories titled 'Delusionalism: The Collected Ramblings
of a Schizophrenic'. 'Connections' is Mike's first novel. It is based on
his own experiences with mental illness.
Check out his book:
http://www.connectionsthebook.com